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World Autism Awareness Day Today!

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Posted: 16 years ago

By Ivan CoreaRedbridge (BBC Action Plus Website)

"It's history in the making.....the United Nations General Assembly in New York has declared Wednesday 2nd April 2008 as World Autism Awareness Day. This is the first ever World Autism Day and we certainly have to thank Qatar for proposing this day and seeing it through.

This is a historic moment at the United Nations. General Assembly officials have told me that it is being taken seriously, it will probarbly be announced at the UN General Assembly and a report will be issued after 2nd April.

In our hi-tech world the message has been flashed all over the globe via Facebbook and within a few weeks facebookers all over the world are organising awareness raising events as far afield as Indonesia, South Africa, United Arab Emirates, Canada........this is great news.....autism is a very serious education and health issue around the world....there are 60 million people with autism and numbers are rising.

Here in the UK there are over 500,000 people with autism. According to UK researchers 1 in 100 children may have autism. In 10 years time there could be well over a million people with autism hence our call to Prime Minister Gordon Brown to back a national strategy on autism and a 10 year plan of action on autism and Asperger's Syndrome.

The Secretary General of the United Nations, Ban Ki-moon is well placed to take the autism agenda forward across the globe. If there are 60 million people with autism around the world how are parents, carers, children and adults with autism and Asperger's Syndrome surving in the Third World? Who is looking after the interests of the poor?

The Autism Awareness Campaign UK is urging the United Nations Secretary General Ban Ki-moon to come up with a world strategy on autism and reach out to those who are below the poverty line in the Third World. They desperately need help. Teachers need training on autism and Asperger's Syndrome; there really needs to be specialist autism schools, employment schemes, help for the elderly, respite care, specialist speech therapy, more sheltered accommodation for people with autism and Asperger's Syndrome.

United Nations agencies must reach out to parents, carers, children and adults with autism and Asperger's Syndrome around the world. Early intervention is key - children with autism in Africa and Asia and parts of South America have a human right to a wold class education. At the moment they are not having access to even a basic education. Because of culture some children are kept at home out of sight. Autism is also confused with mental illness. We need to raise more awareness - these children have so much potential, so do the adults. World leaders need to harness that potential.

The first ever World Autism Awareness Day affords the opportunity for people in every country to raise awareness about autism and Asperger's Syndrome and raise funds for autism organisations and parent groups. Lets hope that the United Nations World Autism Day will be a call to genuine action on autism around the globe.

UN Secretary-General Ban Ki-moon has the political clout to raise the serious education and health issues with world leaders. Leaders of the G8 countries need to reach out to all people with autism and Asperger's syndrome in the Third World. Let us hope and pray that the 2nd of April will be a start....."


 

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Connie thumbnail
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Posted: 16 years ago
Lately I watched a show on Oprah about Autism, and how those kids were in a world of their own, it made me really sad....everyday was a struggle just to get those kids to do normal things. Even in Dr Phil's show there was a couple who had 6 kids and they were all autistic, they would only point at things and some of them used to cry, cos the parent's could not understand what the kids were asking for. I have great respect for these parents who have so much of patience bringing up kids like these. Sometimes I feel we who are blessed with normal kids crib so much...imagine if we were in a situation like them??

Thanks for the article 😊 I'm happy that so many countries have joined cos many people do confuse autism with being mentally ill...we have an autism centre in U.A.E and I'm happy there are people who are taking time out to help with these children who also need to experience things just like any other normal child.

Edited by Connie - 16 years ago
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Posted: 16 years ago
Autism is a topic very close to my heart.

However many people are still not aware of exactly what it is and the impact it has on thise who have it, or their family and/or loved ones.

Autism is a life long disability arising from a brain impairment that results in the individual having difficulties in forming relationships, communication and general social interaction. People with autism will find using their imagination difficult and may enjoy repetitive or monotonous activity.

From NAS Website

It can be hard to create awareness of autism as people with the condition do not 'look' disabled: parents of children with autism often say that other people simply think their child is naughty; while adults find that they are misunderstood.

The characteristics of autism vary from one person to another but are generally divided into three main groups.

"For people with autistic spectrum disorders, 'body language' can appear just as foreign as if people were speaking ancient Greek."

People with autism have difficulties with both verbal and non-verbal language. Many have a very literal understanding of language, and think people always mean exactly what they say. They can find it difficult to use or understand:

facial expressions or tone of voice
jokes and sarcasm
common phrases and sayings; an example might be the phrase 'It's cool', which people often say when they think that something is good, but strictly speaking, means that it's a bit cold.
Some people with autism may not speak, or have fairly limited speech. They will usually understand what other people say to them, but prefer to use alternative means of communication themselves, such as sign language or visual symbols.

Others will have good language skills, but they may still find it hard to understand the give-and-take nature of conversations, perhaps repeating what the other person has just said (this is known as echolalia) or talking at length about their own interests.

It helps if other people speak in a clear, consistent way and give people with autism time to process what has been said to them.

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"Socialising doesn't come naturally - we have to learn it."
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People with autism often have difficulty recognising or understanding other people's emotions and feelings, and expressing their own, which can make it more difficult for them to fit in socially. They may:

not understand the unwritten social rules which most of us pick up without thinking: they may stand too close to another person for example, or start an inappropriate subject of conversation
appear to be insensitive because they have not recognised how someone else is feeling
prefer to spend time alone rather than seeking out the company of other people
not seek comfort from other people
appear to behave 'strangely' or inappropriately, as it is not always easy for them to express feelings, emotions or needs.
Difficulties with social interaction can mean that people with autism find it hard to form friendships: some may want to interact with other people and make friends, but may be unsure how to go about this.

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"We have trouble working out what other people know. We have more difficulty guessing what other people are thinking."
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Social imagination allows us to understand and predict other people's behaviour, make sense of abstract ideas, and to imagine situations outside our immediate daily routine. Difficulties with social imagination mean that people with autism find it hard to:

understand and interpret other people's thoughts, feelings and actions
predict what will happen next, or what could happen next
understand the concept of danger, for example that running on to a busy road poses a threat to them
engage in imaginative play and activities: children with autism may enjoy some imaginative play but prefer to act out the same scenes each time
prepare for change and plan for the future
cope in new or unfamiliar situations.
Difficulties with social imagination should not be confused with a lack of imagination. Many people with autism are very creative and may be, for example, accomplished artists, musicians or writers.

Love of routines

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"One young person with autism attended a day service. He would be dropped off by taxi, walk up to the door of the day service, knock on it and be let in. One day, the door opened before he could knock and a person came out. Rather than go in through the open door, he returned to the taxi and began the routine again."
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The world can seem a very unpredictable and confusing place to people with autism, who often prefer to have a fixed daily routine so that they know what is going to happen every day. This routine can extend to always wanting to travel the same way to and from school or work, or eat exactly the same food for breakfast.

Rules can also be important: it may be difficult for a person with autism to take a different approach to something once they have been taught the 'right' way to do it. People with autism may not be comfortable with the idea of change, but can cope well if they are prepared for it in advance.

Sensory sensitivity
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"Rowan loves art but he hates wearing a shirt to protect his clothing - the feeling of the fabric against his skin causes him distress. We have agreed with his school that he can wear a loose-fitting apron instead."
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People with autism may experience some form of sensory sensitivity. This can occur in one or more of the five senses - sight, sound, smell, touch and taste. A person's senses are either intensified (hypersensitive) or under-sensitive (hypo-sensitive).

For example, a person with autism may find certain background sounds, which other people ignore or block out, unbearably loud or distracting. This can cause anxiety or even physical pain.

People who are hypo-sensitive may not feel pain or extremes of temperature. Some may rock, spin or flap their hands to stimulate sensation, to help with balance and posture or to deal with stress.

People with sensory sensitivity may also find it harder to use their body awareness system. This system tells us where our bodies are, so for those with reduced body awareness, it can be harder to navigate rooms avoiding obstructions, stand at an appropriate distance from other people and carry out 'fine motor' tasks such as tying shoelaces.

Special interests
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"My art activity has enabled me to become a part of society. When there is something that a person with autism does well, it should be encouraged and cultivated."
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Many people with autism have intense special interests, often from a fairly young age. These can change over time or be lifelong, and can be anything from art or music, to trains or computers. Some people with autism may eventually be able to work or study in related areas. For others, it will remain a hobby.

A special interest may sometimes be unusual. One person with autism loved collecting rubbish, for example; with encouragement, this was channelled into an interest in recycling and the environment.

Learning disabilities
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"I have a helper who sits with me and if I'm stuck on a word she helps me. It makes a big difference."
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People with autism may have learning disabilities, which can affect all aspects of someone's life, from studying in school, to learning how to wash themselves or make a meal. As with autism, people can have different 'degrees' of learning disability, so some will be able to live fairly independently - although they may need a degree of support to achieve this - while others may require lifelong, specialist support. However, all people with autism can, and do, learn and develop with the right sort of support.

Other conditions are sometimes associated with autism. These may include attention deficit hyperactivity disorder (ADHD), or learning difficulties such as dyslexia and dyspraxia

Estimated prevalence rate in the UK for children (From NAS website) is 1 in 100

No prevalence studies have ever been carried out on adults, but it doesnt take much to work out there are many adults also affected.

Have you or anyone you know been touched by autism? How did it affect you, were you aware of it and the associated difficulties that often go with it?

Would love to hear from you with your views or even qwueries if you would like to know more about autism.

<<Apologies to all for lengthy article!!>>>

😡 M 😡

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Posted: 16 years ago

This content was originally posted by: Connie

Lately I watched a show on Oprah about Autism, and how those kids were in a world of their own, it made me really sad....everyday was a struggle just to get those kids to do normal things. Even in Dr Phil's show there was a couple who had 6 kids and they were all autistic, they would only point at things and some of them used to cry, cos the parent's could not understand what the kids were asking for. I have great respect for these parents who have so much of patience bringing up kids like these. Sometimes I feel we who are blessed with normal kids crib so much...imagine if we were in a situation like them??

Thanks for the article 😊 I'm happy that so many countries have joined cos many people do confuse autism with being mentally ill...we have an autism centre in U.A.E and I'm happy there are people who are taking time out to help with these children who also need to experience things just like any other normal child.

Thanks for sharing your positive feelings and experience of autism.

What people dont realise is that autism is a spectrum - children and adults can go from having no speech or low IQ  to being near geniuses and almost as normal as other kids.

Social situations though are always the giveaway

But thank you most of all for highlighting the fact that so many mistake it as a mental illness - it isnt. It's a brain impairmernt which with early intervention can allow the person to make significant progress and maybe achieve independance and/or have a good quality of life 

😡M😡

qwertyesque thumbnail
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Posted: 16 years ago
if you could change the ID from mad mad girl to something else just out of respect for this day.. Autism post by mad mad girl is slightly... wierd...and insulting the autistic kids.... 😆
raj5000 thumbnail
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Posted: 16 years ago
A fantastic post and response... I just salute to kid's and parents going thru it...it's rare but when it impacts immediate family ppl can understand the depth of it.

Anyways my whole hearted gratitude and love to all going thru this situation.
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Posted: 16 years ago

This content was originally posted by: qwertyesque

if you could change the ID from mad mad girl to something else just out of respect for this day.. Autism post by mad mad girl is slightly... wierd...and insulting the autistic kids.... 😆

😆😆😆 Touche! The irony was completely lost on me whilst thinking about the serious side of things!!!!

Thanks for making me laugh!😃 Not often I do that when someone takes the p*** out of my ID!!!!😡😉

😡M😡

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Posted: 16 years ago

This content was originally posted by: raj5000

A fantastic post and response... I just salute to kid's and parents going thru it...it's rare but when it impacts immediate family ppl can understand the depth of it.

Anyways my whole hearted gratitude and love to all going thru this situation.

Thanks for the appreciation! Cant say how really pleased I am with the responses.

For those who think I'm being a bit  the reason I say this is that this topic has been viewed by many even if they did not post.......... that's OK!😊

Hopefully by drawing autism to peoples attention, this will in turn (I hope) increase people's knowledge and understanding  of autism

Thanks to all you lovely people on the Forum!👏

Morgoth thumbnail
Posted: 16 years ago
I recommend reading The Curious Incident of the Dog in the Night-time, a novel by Mark Haddon.

The narrator of the novel is a 15 year old autistic boy named Christopher; he suffers from Asperger syndrome.
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Posted: 16 years ago
applause to you girl, for posting this thought provoking topic!! 👏 👏 👏

i attend this "child-enrichment /behaviour workshops" . last workshop was focussed solely on "autistic kids " . for 3 hours, i was glued to my seat and lost in their world. truly a enlightening experience. 👍🏼

will come back if time permits. but as of now,
MMG, thanx for the efforts and thought for compiling the matter in a precise way!! appreciate it !! 👏 😊